Time Ticks | “What I Wish People Understood About Rare Disease” by Maja Francisco

On Tuesday evening, we received a news that till now, we still couldn’t wrap our minds on. Mixed feelings of shock, deep sadness and guilt…

In today’s article I’ll share with you my realizations and articles my friend wrote – I hope for others to better understand people with rare disease, too.

Realizations

Time Ticks

Time won’t wait for you. Use it well and spend time with people who matter, like family and friends.

Connectedness Matters

In the busy times when we couldn’t even grapple with the demands of work plus balancing it with our life responsibilities, it’s so difficult to find time to connect with others.

As they say, “kung gusto may paraan,” Instead of finding time, we should make time for people who matters. Carve out time for connectedness.

Moral Supports Means A Lot

I realized that in the final analysis of life, it is still how we lived and how well we served and supported others that truly matters.

In loving memory of our friend, Maja, I’m sharing her articles with you.


5 Things I Wish People Understood About Rare Disease by Maja Blanca

One of the most common thoughts people have about those with invisible illnesses is, “But you don’t look sick!” My brand of invisible illness and rare disease – hyper IGE syndrome – is something few people know about and understand. There five things I want others to know about people with invisible illnesses and rare diseases.

Please click link below to read entire article.

What I Wish People Understood About Rare Disease

Also find her other article here.

Maja was an academic and a registered psychologist. She lived in Legazpi City, Albay, Philippines. She divides her time between health, work, social life and family.


Your prayers for my friend, as she transitions to the next life, and for her family for greater strength at this time will be greatly appreciated.

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About Emile Therese

Emile Therese is a graduate of the University of Philippines in Diliman with a degree in Psychology. She is happily married. She and her husband, Dennis, are blessed with one amazing daughter (and hopefully at least one more child). She believes that values and character ought to be taught as early as possible and that these are key to community and nation building. This was also how she and her siblings were brought up by their two awesome parents! She is a Certified HR Professional who advocates employee engagement in its entirety. Emile believes that true employee engagement rests on the pillars of basic human needs and in ensuring that process and leadership basics are in place - the employee engagement imperatives. She hopes to contribute to making this world a better place for all of us now and the next generation. She loves sipping tea, conversations, reading and writing. The latter gave birth to two blogs - Purposeful Parenting Journey (purposefulparentingjourney.com) and Engagement Imperative (engagementimperative.com).

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